Who we are

The Victorian Lung Cancer Registry (VLCR) is a clinical quality registry that collects information about diagnosis, treatment and outcomes of individuals diagnosed with lung cancer in Victoria.

The Registry is managed by the Cancer Research Program part of Public Health and Preventive Medicine, Monash University.

The VLCR was established in 2011 with funding from the Victorian Cancer Agency. As the registry has continued to grow, it now collects data for approximately 85% of all new lung cancer cases in Victoria. In 2021-22, the VLCR has expanded to include Royal Hobart Hospital and Launceston Hospital. Ethics approval has been awarded to recruit hospitals in the NSW, ACT and South Australia.

Our purpose

The main aim of the VLCR is to monitor the patterns of care and outcomes for individuals diagnosed with lung cancer at participating public and private hospitals.
The Registry provides population-based information on the patterns of care for people diagnosed with lung cancer and assesses whether there is variation in health-related quality of life and survival following diagnosis of lung cancer across Victoria.
The VLCR monitors a suite of quality indicators (QIs) that provide the means to measure the real-world implementation of agreed diagnostic, management, and treatment pathways, in order to assess their relationship with both clinical and patient-reported outcomes.

Why participate

Participating and allowing information about your diagnosis, treatment and health outcomes to be collected by the VLCR, you are contributing to the improvement of the quality of care and outcomes for patients diagnosed with lung cancer in the future.

The VLCR is an opt-out registry which holds participant discretion and privacy with the utmost regard. We are committed to maintaining participant autonomy and confidentiality at all times.

Participants wishing to remove consent to participate in the registry can do as at any time.

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