Victorian Mesothelioma Outcomes Registry (VMOR)

What is Mesothelioma?

Mesothelioma is a rare cancer often linked to a history of asbestos exposure. It most commonly affects the lining layer around the lungs (pleural mesothelioma) but can also develop in the abdomen (peritoneal mesothelioma).

Please see the ‘Mesothelioma Info & Support Services’ tab for more detailed information about mesothelioma and available support and information services.

What is the Victorian Mesothelioma Outcomes Registry (VMOR)?

Our mesothelioma outcomes registry collects comprehensive real world data on current patterns of care and access to immunotherapy for people diagnosed with mesothelioma across the state of Victoria. In the future this data will be linked with a bespoke survey, co-designed by experts and people from the mesothelioma community, to understand people’s quality of life and experience of care following their diagnosis.

We believe that the information we collect and report will enable state health systems and integrated cancer services to understand the problems people affected by mesothelioma are experiencing, what care is being given and how current approaches may be modified to improve outcomes in the future.

Chair of Steering Committe

Susan Harden
Chair, VMOR Steering Committee
Radiation Oncologist, Peter MacCallum Cancer Centre
VLCR Senior Research Fellow

Consumers and Patient Advocacy Groups

  • Mr Brian and Ms Karen Healy
  • Ms Vicki Hamilton – Asbestos Council of Victoria/GARDS

Respiratory Medicine

  • Associate Professor Robert Stirling
  • Professor Fraser Brims
  • Dr Sanjeevan Muruganandan

Medical Oncology

  • Professor John Zalcberg

Epidemiology

  • Dr Ewan MacFarlane
  • Professor Karen Walker-Bone
  • Professor Penelope Schofield

This study is funded by the Cancer Council Grants-In-Aid and endorsed by Thoracic Oncology Group Australasia (TOGA).