Registry Governance

The VLCR is housed in the Department of Epidemiology and Preventive Medicine at Monash University. The operational team are part of the Cancer Research Program headed by Professor John Zalcberg. Clinical oversight and registry support is provided to the operational team and by a Steering Committee. The Steering Committee oversees corporate and clinical governance and promote activities within the registry. The committee meets at least twice a year, and is responsible for maintaining the overall project. The committee provides oversight of the registry’s activities including ensuring that the quality of data is monitored and that policies are established to address issues of clinical interest or significance that may arise, including those relating to quality of care. The Committee comprises project investigators, senior clinicians, senior registry and staff from DEPM and a consumer and industry representatives.

The VLCR is also a registered project with the Monash University Human Research Ethics Committee (MUHREC). The ethical aspects of the VLCR have been approved by the Human Research Ethics Committees of Monash Health, Epworth HealthCare, and Alfred Health which is our lead HREC participating in the National Mutual Acceptance (NMA) Scheme. This project will be carried out in accordance to the National Statement on Ethical Conduct in Human Research (2007) – Updated 2022.

If you have any complaints about any aspect of the project, the way it is being conducted or any questions about being a research participant in general, contact:

  • Monash Health Human Research Ethics Committee on 03 9594 4611
  • Alfred Health HREC on 03 9076 2935

The VLCR database is hosted by Monash University. Monash Registry database security is maintained using encryption of data, a managed and audited protocol for access, training and accreditation of personnel, role-based access and authentication of data. Monash Registry databased are housed and managed in an ISO 27001 certified environment. The ISO 24001 certification incorporates the Privacy Act (1988) and Health Records Act (2001) within its Applicability Statement.

Steering Committee

The VLCR has a Steering Committee of experts who assist with making strategic decisions for the project and provide guidance to the operational team.
The Steering Committee is responsible for assessing external applications for data from the registry.

Chair, VLCR Steering Committee

Associate Professor Robert Stirling
Chair, VLCR steering Committee
Senior Respiratory Physician, Alfred Health
Respiratory Medicine

Medical Oncology

Professor John Zalcberg
VLCR Academic Lead
Head, Cancer Research Program, Monash University
Medical Oncology

Dr Peter Briggs
Medical Director SMICS
Medical Oncology

Associate Professor Paul Mitchell
Director, North-Eastern Integrated Cancer Service
Medical Oncology

Dr Inger Olesen
Medical Oncologist Andrew Love Cancer Centre, Geelong
Medical Oncology

Associate Professor Tom John
Medical Oncologist, Peter MacCallum Cancer Centre
Medical Oncology

Associate Professor Gary Richardson
Director, Cabrini Haematology & Oncology Service
Medical Oncology

Respiratory Medicine

Dr Matthew Conron
Director, Respiratory Medicine, St Vincent’s Hospital
Respiratory Medicine

Ms Mary Duffy
Lung Nurse Coordinator, Peter MacCallum Cancer Centre
Respiratory Medicine

Associate Professor David Langton
Respiratory & Sleep Physician, Peninsula Hospital
Respiratory Medicine

Surgical

Mr Simon Knight
Cardiothoracic Surgeon, Austin Health, Western Health
Cardiothoracic surgery

Mr Gavin Wright
Thoracic Surgeon, Peter MacCallum Cancer Centre
Thoracic Surgery

Epidemiology and Biostatistics

Professor Sue Evans
Director, Victorian Cancer Registry at Cancer Council Victoria
Epidemiology

Dr Cathy Martin
Senior Research Fellow,  Monash University
Biostatistics, Data Analytics/Modelling and Health Economics

Consumer advisor

Dr Lisa Briggs
Consumer advocate, Melbourne, Victoria
Consumer advisor

Ms Jacqueline Lesage
Consumer advocate, Melbourne, Victoria
Consumer advisor

Mr Tom Wood
Consumer advocate, Melbourne, Victoria
Consumer advisor

Pharmacy

Dr Marliese Alexander
Director of Pharmacy, Peter MacCallum Cancer Centre
Pharmacy 

Palliative Care

Dr Nicola Atkin
Palliative Care Physician, Peter MacCallum Cancer Centre
Palliative care


POLICY DOCUMENTS

The VLCR has a Data Access and Publication Policy and Guidelines.
If you require further information or would you like submit an data access form to the VLCR, please contact the VLCR Coordinator.